We have launched the HEROIC Registry so families have the opportunity to engage in participant-centric research. Aggregating information from individuals with Lynch about their health and their lifestyle will help advance overall well-being for all. We are working on new support programs so families have access to life-saving information and the largest network of peer support groups. We work with researchers, and gives our community a bigger voice.
Together with you, we are making incredible progress - but there is still so much to do. Please join me in taking action for our future - and our children's futures - by fundraising or donating to this special cause.