Healthy Brain Initiative for People with Intellectual and Developmental Disabilities

Event Date: 

Tuesday, May 4, 2021 - 2:00pm to 3:00pm

Event Location: 

Webinar

Please join us for 2021 Healthy Brain Webinar Series for People with Intellectual and Developmental Disabilities!

Tuesday, May 4, 2021 (2 - 3 DST)
Healthy Brain Initiative for People with Intellectual and Developmental Disabilities

Beth Marks, PhD, RN, FAAN, HealthMatters Program, University of Illinois at Chicago
Matt Janicki, PhD, University of Illinois at Chicago, US National Task Group on Intellectual Disabilities and Dementia Practices
Kathy Service, RN, MS, FNP-BC, CDDN, US National Task Group on Intellectual Disabilities and Dementia Practices
Jasmina Sisirak PhD, MPH, HealthMatters Program, University of Illinois at Chicago

This presentation will introduce new the University of Illinois at Chicago’s Healthy Brain Initiative for People with Intellectual and Developmental Disabilities (HBI-PwIDD). HBI-PwIDD aims to enhance supports and quality of care and address misconceptions that Alzheimer’s disease and various types of dementias are a natural course of aging for people with IDD. Guided by the Healthy Brain Initiative Road Map Series and led by the HealthMatters Program team in partnership with the National Task Group (NTG) on Intellectual Disabilities and Dementia Practices and ENGAGE-IL HRSA Geriatrics Workforce Enhancement Program (GWEP), HBI-PwIDD is developing culturally tailored brain health messages, resources, and trainings accessible to people with IDD, families, caregivers, community partners, public health and healthcare professionals. As we begin to develop a central resource with strategies to improve brain health across the lifespan for people with IDD and to support health and wellness of caregivers, we would like to mobilize our local, state, and national partners to raise awareness of (ADRDs) as a public health issue to achieve health equity among people with IDD. As we develop the healthy brain community-of-practice into a “one-stop space” offering trainings and curating brain health practices and dementia positive health care resources, this webinar will engage participants to discuss brain health questions, along with needed brain health resources for promoting healthy brains and dementia positive health care. 

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Tuesday, May 25, 2021 (2 - 3 DST)
Brain Health Across the Lifespan for People with Intellectual and Developmental Disabilities

Lucille Esralew, PhD, NADD-CC, Office of Statewide Clinical Services, Clinical Services Branch for the California Department of Developmental Services

This webinar will present best practice and policies that can support healthy habits for brain health among people with intellectual and developmental disabilities across the lifespan (e.g., from early intervention through retirement). Dr. Esralew will discuss what we know about the trajectory of healthy brain aging for persons with IDD and how good brain health can help people realize their abilities and optimize their cognitive, emotional, psychological and behavioral functioning to cope with life situations. Considerations about aging with a disability and with dementia will be discussed. The use of the National Task Group–Early Detection Screen for Dementia (NTG-EDSD) as a brain health screen tool will be presented, along with using the EDSD as a tool to promote health and advocate for health to determine if signs and symptoms of change in brain health exist. Lastly, strategies to mitigate Alzheimer's disease and other related dementias (ADRDs) for people with IDD and their caregivers will be discussed through the six pillars of health (physical exercise, food and nutrition, medical health, sleep and relaxation, mental fitness, social interaction). 

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Tuesday, June 29, 2021 (2 - 3 DST)
Nutrition and Brain Health for People with Intellectual and Developmental Disabilities

Dawna Torres Mughal, PhD, RDN, LDN, FADA, FAND, Morosky College of Health Professions and Sciences at Gannon University

This webinar will focus on the role of nutrition in brain health across the life span. It includes guidelines for reducing risks for Alzheimer’s disease and related dementias (ADRD) in people with intellectual and developmental disabilities (IDD) and their caregivers. Since promoting brain health is multifactorial, the webinar will also discuss the importance of physical activity, sleep and relaxation and social interactions to the individuals’ overall health How do you enhance these lifestyle factors? Hypertension (high blood. Pressure), diabetes, hyperlipidemia (high blood cholesterol), and obesity are known risk factors for Alzheimer’s disease. Practical dietary principles will be discussed that can help persons with IDD and their caregivers reach their health target in these areas. It should be noted that although certain nutrients help with brain function and disease treatment, what matters is not one food or one nutrient but the total dietary pattern individualized to each person’s needs. The nutrients will be translated to culturally appropriate food choices. 

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